| Shelter from the Storm: Caring for a Child with a Life-Threatening Condition Contributor(s): Hilden, Joanne (Author), Tobin, Daniel (Author), Lindsey, Karen (Author) |
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ISBN: 0738205346 ISBN-13: 9780738205342 Publisher: Da Capo Lifelong Books OUR PRICE: $18.99 Product Type: Paperback Published: December 2002 Annotation: A wise and compassionate guide to caring for a critically ill child. |
| Additional Information |
| BISAC Categories: - Medical | Caregiving - Family & Relationships | Parenting - General - Family & Relationships | Death, Grief, Bereavement |
| Dewey: 649.8 |
| LCCN: 2002114134 |
| Physical Information: 0.56" H x 5.34" W x 8.72" (0.70 lbs) 240 pages |
| Themes: - Topical - Death/Dying - Topical - Family |
| Descriptions, Reviews, Etc. |
| Publisher Description: Critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times. |