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When a healthy, two-week-old baby turns blue and has trouble breathing, his stunned parents rush him to the emergency room. "We've got a baby It looks bad--really bad " a doctor shouts to his team. Tests reveal that he's in heart failure, with a transplant his only hope of survival. But even if a heart can be found, he's far too ill to survive surgery.
This is the story of that child, his family, and the astonishing events that surround this day and those to follow. A collection of anecdotes and observations shows parents rising into each new challenge, never able to predict
what the next moment might bring, but somehow finding their way, step by unknown step. A tale of terror, hope and exceptional courage, this book paints in vivid detail their responses to a wild emotional ride, where surprise
consistently replaces expectation. None of this was in the plan, but their story will warm the heart of every reader whose life has taken a sudden turn into an unknown land without a map to guide the way.