Up Before the Count: An Autobiography - My Journey into Battle Against a Rare Condition Contributor(s): Ayala, Edwin (Author) |
|
ISBN: 168181398X ISBN-13: 9781681813981 Publisher: Strategic Book Publishing & Rights Agency, LL OUR PRICE: $9.45 Product Type: Paperback Published: November 2016 |
Additional Information |
BISAC Categories: - Biography & Autobiography | Personal Memoirs - Health & Fitness | Diseases - Nervous System (incl. Brain) - Medical | Neurology |
Physical Information: 0.21" H x 5.98" W x 9.02" (0.30 lbs) 86 pages |
Descriptions, Reviews, Etc. |
Publisher Description: Author Edwin Ayala was diagnosed with the extremely rare and incurable condition called choreacanthocytosis in 2003. This is his story. As a result of being stricken with the condition known as ChAc, he was forced to retire from UPS in 2008 after nineteen years of service. At age forty-three, he decided to pursue his dream of becoming an author despite the limitations posed by ChAc. The condition is so rare that little information on this disease is available, but here is a brief synopsis: ChAc has no cure and its cause is not definitively known. Difficult to diagnose, its symptoms include fatigue, loss of speech, loss of weight due to involuntary biting of the cheeks and tongue, difficulty in swallowing, and involuntary muscle movement. To learn more about this progressive disease, visit http: //www.rareconnect.org. The aspiring new author Edwin Ayala lives in southern Massachusetts with his wife and family. Publisher's website: http: //sbpra.com/EdwinAyala |