New Challenges for Biobanks: Ethics, Law and Governance Contributor(s): Dierickx, Kris (Editor), Borry, Pascal (Editor) |
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ISBN: 9050959741 ISBN-13: 9789050959742 Publisher: Intersentia OUR PRICE: $73.26 Product Type: Paperback Published: December 2009 |
Additional Information |
BISAC Categories: - Law | Ethics & Professional Responsibility - Law | Forensic Science |
Dewey: 344 |
LCCN: 2010288500 |
Physical Information: 0.8" H x 6.3" W x 9.4" (1.10 lbs) 278 pages |
Descriptions, Reviews, Etc. |
Publisher Description: The last few years have witnessed an important expansion in the collection and processing of human biological samples and related information data. Biobanks - huge repositories of human biological specimens - have a strategic importance for genetic research, clinical care, and future treatments. However, biobanks are facing many major ethical, legal, and governance challenges, including informed consent, privacy, ownership, commercialization, and harmonization. In addition, forensic DNA-databases raise specific issues. These databases can be an important tool for the police services in their search for the perpetrator of a crime, yet this raises ethical questions with regard to the relationship between liberty and security. This book - a publication of the European Commission funded research project GeneBanC - offers a rich source of material on the ethical, legal, and governance aspects of clinical biobanks, population biobanks, and forensic biobanks. It's research will be of interest to policy makers, academics, and legislators. |